
Councils & Committees



Mitali Vedula, Co-Chair
KIDS Connecticut
Nadia Ansari, Co-Chair
KIDS CHOC-Rady
KIDS Virtual
The iCAN Youth Council are active leaders in guiding iCAN through the unique perspective of youth throughout research, science, advocacy, technology, and medicine. Out youth leaders are given special opportunities to share their voice through telling one's story in order to help support patient centered care, collaborative discussion, and quality improvement. This is a leadership role with iCAN for youth ages 8-18.
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Provide perspective of pediatric patients and youth that are involved within public speaking, focus groups, internal and external discussion.
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Develop unique quality improvement and research projects designed to spotlight key areas within pediatric healthcare.
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Participate in survey development, execution, and data dissemination.
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This is a wonderful opportunity to gain public speaking experience and support higher education and career goals.
Commitment: A 2-year commitment is required.



Deb Discenza, Co-Chair
Jennifer Degl, Co-Chair
The iCAN Parent Council is an engaged group of parents and caregivers whom are dedicated by supporting youth initiatives throughout iCAN.
Educate young persons, parents, and the global community around the world about iCAN youth as ambassadors within medicine and their role as advisors in quality pediatric health care through utilization of a worldwide knowledge consortium.
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Cultivate a cadre of pediatric patients/partners, parents, and organizations who are involved with pediatric health care, research, and medical systems to be “third party validators” to speak to the importance of iCAN young person involvement in quality initiatives that focus on the need to improve care and outcomes for children and families.
Commitment: A 2-year commitment is required
Parent Council


Education Committee
Colin Hovinga, Chair
iACT
The iCAN Education Committee is dedicated to the creation and implementation of a fun, enlightened educational curriculum for iCAN Research as a way to provide consistency in learning throughout the organization.
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As a member, you will help iCAN develop a common curriculum that all local chapters will offer. You will help suggest and develop content.
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This committee will have representative from multiple countries to make sure the curriculum is international.
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Tell Your Story - Launched 2020.
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iCAN Understanding Pediatric Clinical Research - Launched 2021
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New for 2022: iCAN Leadership Curriculum
Commitment: A 2-year commitment is required.


Summit Planning
Committee
Segolene Gaillard, Chair
KIDS France Chapter Leader
The iCAN Summit Planning Committee is dedicated to the creation and implementation of a fun, educational and positive events (including the annual iCAN Research and Advocacy Summit) for iCAN Research as a way to provide consistency in learning throughout the organization.
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Summit planning throughout the year.
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Will work closely with the host city leader
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Event planning on an ‘as-needed’ basis.
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For 2022, our Summit will be held in Lyon, France, pending the availability of safe travel due to the Global Pandemic.
Commitment: A 1-year commitment is required.


Regulatory Chair
Lynne Yao, MD, Chair
Director, Division of Pediatric and Maternal Health Center for Drug Evaluation and Research (CDER), FDA
iCAN Advisory Board
The iCAN Regulatory Chair provides support and insight to iCAN regarding ethical, legal, governmental standards throughout pediatric healthcare as independent and engaged advisors to ensure there is oversight and adherence to regulatory and industry practices.
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Provide support to iCAN as an overall organization to ensure best practices are maintained legally, ethically and with the focus on supporting the youth member voice.
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Meets on an as-needed basis.


Scientific Abstract Review Chair
Sharon Smith, MD, Chair
Associate Program Director, Pediatric Residency Program
Connecticut Children's Hospital
iCAN Advisory Board
iCAN Director of Research
The iCAN Scientific Abstract Review Chair provides support and insight to iCAN regarding research compliance, ethical, legal, governmental standards throughout pediatric healthcare as independent and engaged advisors to ensure there is oversight and adherence to scientific and regulatory practices.
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Provide support to iCAN as an overall organization to ensure best practices are maintained scientifically, legally, ethically and with the focus on supporting the youth member voice.
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Meets on an as-needed basis.