Councils & Committees

Youth Council

Ananya Ganesh, Chair

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The iCAN Youth Council is active in creating, overseeing, executing and disseminating pediatric issues/topics through the unique perspective of youth throughout research, science, advocacy, technology and medicine. 

• Create and maintain collaboration and perspective of pediatric patients and youth that are involved throughout all facets of pediatric health care to improve the outcome of children and families. 

• Develop unique quality improvement and research projects designed to spotlight key areas within pediatric healthcare. 

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Commitment: A 2-year commitment is required. 

Parent Council

Kirsten Sherman Cervati, Chair  

Senior Director of The Center for Pediatric Clinical Development at PRA Health Sciences.
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The iCAN Parent Council is an engaged group of parents and caregivers whom are dedicated by supporting youth initiatives throughout iCAN.

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• Educate young persons, parents, and the global community around the world about ICAN youth as ambassadors within medicine and their role as advisors in quality pediatric health care through utilization of a worldwide knowledge consortium.

• Cultivate a cadre of pediatric patients/partners, parents and organizations who are involved with pediatric health care, research, and medical systems to be “third party validators” to speak to the importance of ICAN young person involvement in quality initiatives that focus on the need to improve care and outcomes for children and families.

Commitment: A 2-year commitment is required

Education Committee

Begonya Nafria Escalera, Chair

Patient Engagement in Research Coordinator at Barcelona Children’s Hospital Sant Joan de Déu, Spain

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The iCAN Education Committee is dedicated to the creation and implementation of a fun, enlightened educational curriculum for iCAN Research as a way to provide consistency in learning throughout the organization.

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• As a member, you will help iCAN develop a common curriculum that all local chapters will offer. You will help suggest and develop content.

• This committee will have representative from multiple countries to make sure the curriculum is international.

• Roll out is expected 2019-2020. 

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Commitment: A 2-year commitment is required. 

Event Planning

Committee

Segolene Gaillard, Chair

KIDS France Chapter Leader 

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The iCAN Event Planning Committee is dedicated to the creation and implementation of a fun, educational and positive event (including the annual iCAN Research and Advocacy Summit) for iCAN Research as a way to provide consistency in learning throughout the organization.

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• Summit planning  throughout the year.

• Will work closely with the host city leader

• Event planning on an ‘as-needed’ basis.

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Commitment: A 1-year commitment is required. 

Tech Committee

Hampton Woods & Jake Haygood, Co-Chairs

The iCAN Tech Committee is dedicated to the creation and implementation of the iCAN technology components throughout iCAN Research as a way to provide information electronically internally and externally within the iCAN Network. 

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• Maintain cyber security needs.

• Advise on platforms for communication. 

• Develop, test and implement technology for Event Planning, Social Media, Youth Council, Parent Council as a way to help strengthen our virtual meeting needs. 

• Maintain software licenses, passwords, and email

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Commitment: A 2-year commitment is required. 

Regulatory Committee

Lynne Yao, MD, Chair  

Director, Division of Pediatric and Maternal Health Center for Drug Evaluation and Research (CDER), FDA ​

The iCAN Regulatory Committee provides support and insight to iCAN regarding ethical, legal, governmental standards throughout pediatric healthcare as independent and engaged advisors to ensure there is oversight and adherence to regulatory and industry practices. 

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• Provide support to iCAN as an overall organization to ensure best practices are maintained legally, ethically and with the focus on supporting the youth member voice. 

• Meets on an as-needed basis.

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Commitment: Commitment varies; a two-year term is typical. 

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Newsletter Committee

Chester Koh, MD, Chair  

 Southwest National Pediatric Device Consortium (SWPDC)

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The iCAN Newsletter Committee is dedicated to the creation and implementation of a fun, enlightened annual and quarterly newsletter for iCAN Research as a way to provide consistency in learning throughout the organization.

• Be your own author and share to the world of what is happening within iCAN and around the globe throughout pediatric healthcare

• We put out two Newsletters a year, one of which will be a Summit Recap.

Commitment: A 1-year commitment is required.