Tue, Sep 15 | https://globalgenes.org/event/live/

A RARE Patient Advocacy (un)Summit

Registration is Closed

Time & Location

Sep 15, 2020, 9:30 PM – Sep 26, 2020, 5:00 PM

About The Event

A RARE Patient Advocacy (un)Summit

Join Global Genes for a variety of engaging and educational online events, meet-ups, workshops and performances September 15-25, 2020 (times vary according to the daily agenda, so be sure to mark your calendar) at Global Genes LIVE! A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community, stakeholders, and allies with opportunities to connect and engage with each other through interactive activities paired with educational programming.

  • Participants will gain insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and strategic ways to accelerate change.
  • iCAN will be participating on September 24-26 (see agenda for more details)

Register now to experience new and exciting programming activities at Global Genes LIVE! Please note that all week one activities (September 15-20) will be livestreamed on Facebook and do not require a registration.

Registration is Closed
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Checks should be made payable to :

International Children's Advisory Network

317 Faw Lane

Marietta, GA 30060

The International Children's Advisory Network Inc., (iCAN) is a tax exempt organization as described in Section 501(c)3 of the Internal Revenue Code