Tue, Sep 15
|https://globalgenes.org/event/live/
A RARE Patient Advocacy (un)Summit
Join in for a variety of engaging and educational online events, meet-ups, workshops and performances September 15-25, 2020 at Global Genes LIVE! A RARE Patient Advocacy (un)Summit.
Time & Location
Sep 15, 2020, 9:30 PM – Sep 26, 2020, 5:00 PM
https://globalgenes.org/event/live/
About The Event
A RARE Patient Advocacy (un)Summit
Join Global Genes for a variety of engaging and educational online events, meet-ups, workshops and performances September 15-25, 2020 (times vary according to the daily agenda, so be sure to mark your calendar) at Global Genes LIVE! A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community, stakeholders, and allies with opportunities to connect and engage with each other through interactive activities paired with educational programming.
- Participants will gain insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and strategic ways to accelerate change.
- iCAN will be participating on September 24-26 (see agenda for more details)
Register now to experience new and exciting programming activities at Global Genes LIVE! Please note that all week one activities (September 15-20) will be livestreamed on Facebook and do not require a registration.