Guide to Patient Involvement in Rare Disease Therapy Development

On January 27th, the EveryLife Foundation for Rare Diseases, in partnership with Biotechnology Innovation Organization (BIO), National Health Council, and the Pharmaceutical Research and Manufacturers of America (PhRMA), will introduce a transformational resource, the “Guide to Patient Involvement in Rare Disease Therapy Development.” Join us for this special webinar to learn more about this new resource and how it can further embolden your engagement with partners within the therapy development ecosystem. This landmark tool was developed by nearly 100 community leaders over the past year during the PFDD Rare Disease Compendium Roundtables, a series of four virtual workshops that considered the application of FDA Guidances across four lifecycle stages of medical product development.