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Fri, Jun 21


1600 Lamar St

NORD Patient and Family Forum

Join NORD and ICAN KIDS Houston as they partner to share patient and family voices during the NORD Patient and Family Forum

Registration is Closed
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NORD Patient and Family Forum
NORD Patient and Family Forum

Time & Location

Jun 21, 2019, 7:00 AM – Jun 23, 2019, 11:00 PM

1600 Lamar St, 1600 Lamar St, Houston, TX 77010, USA

About The Event

Join NORD this June in Houston, TX for a very special gathering! The 2019 Living Rare, Living Stronger|NORD Patient & Family Forum will bring the rare community together with physicians, medical students, and allied health professionals for a program of learning, sharing and connection – in an atmosphere of support and understanding – plus fun!

Who is invited to the Living Rare, Living Stronger Forum?

Patients and their families (children are welcome!)


Medical professionals (clinicians, nurses, pharmacists, and more)

Students (medical, genetic counseling, and more)

Patient organization leaders and patient advocates

Researchers and academics


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