top of page
Tue, Nov 15
|Webinar
Rare Disease Legislative Advocates November Webinar
During this webinar, advocates will hear from organization leaders about their end-of-year policy efforts, and how advocates can help bring those efforts across the finish line.
Registration is closed
See other events
Time & Location
Nov 15, 2022, 12:00 PM EST
Webinar
About The Event
Agenda:
Lymphedema Treatment Act, Heather Ferguson, Lymphedema Advocacy Group
Ensuring Lasting Smiles Act, Becky Abbott, National Foundation for Ectodermal Dysplasias
Better Empowerment Now to Enhance Framework and Improve Treatments (BENEFIT) Act, Lauren Stanford, Parent Project Muscular Dystrophy
Speeding Therapy Access Today (STAT) Act, Dylan Simon, EveryLife Foundation for Rare Diseases
bottom of page