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Tue, Nov 15



Rare Disease Legislative Advocates November Webinar

During this webinar, advocates will hear from organization leaders about their end-of-year policy efforts, and how advocates can help bring those efforts across the finish line.

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Rare Disease Legislative Advocates November Webinar

Time & Location

Nov 15, 2022, 12:00 PM EST


About The Event


Lymphedema Treatment Act, Heather Ferguson, Lymphedema Advocacy Group

Ensuring Lasting Smiles Act, Becky Abbott, National Foundation for Ectodermal Dysplasias

Better Empowerment Now to Enhance Framework and Improve Treatments (BENEFIT) Act, Lauren Stanford, Parent Project Muscular Dystrophy

Speeding Therapy Access Today (STAT) Act, Dylan Simon, EveryLife Foundation for Rare Diseases

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