Hope for Henry/Children's National

Welcome to iCAN KIDS Hope for Henry/Children's National

 

Hope for Henry and Children’s National have taken an important step in celebrating, incorporating, and communicating the needs of children in medicine, research, and innovation in the greater Washington, DC area with the founding of the iCAN chapter. This new chapter is a collaboration between the two institutions, the American Academy of Pediatrics (AAP), Section on Advances in Therapeutics and Technology (SOATT), local AAP Chapters, local schools, and other community partners.

 

This new partnership significantly bolsters the capabilities of both groups, combining the Kids and Families Impacting Disease Through Science (KIDS) group at Hope for Henry with the resources and facilities of Children’s National, and focuses on providing children with past clinical experience, experience using hospital services, chronic medical conditions and/or take medication regularly, and/or an interest in medicine and/or research, opportunities to share their experience with key stakeholders and learn more about child health.

 

As a part of this strategic collaboration, we will focus on two core objectives:

  • Education Initiative. Providing educational “field days” to our core group of iCAN members, focused on the clinical, research, and policy/advocacy elements of health and health care. Field days will include tours of the Children’s National facilities, presentations by faculty and staff, and exposure to different professions in each arena of health care.

  • Feedback Initiative. Month-to-month opportunities for the iCAN members to provide feedback on different projects at Hope for Henry and Children’s National. Examples include Hope for Henry procedure charts and Children’s National assent policies.

 

Previous Events

  • Spring, 2019 – In our inaugural project, the iCAN members provided feedback on a comic book for the pharmaceutical company Eli Lilly. Their insight helped to refine and improve materials designed to give kids of all ages a better understanding of clinical research.

  • Fall, 2019 – Clinical Field Day. iCAN members explored clinical practice with a tour of the neonatal intensive care unit and emergency transportation services. As a part of the tours, the members learned how physicians and nurses treat very small, premature, or congenitally ill babies and how paramedics perform a wide range of emergency care skills, such as automated defibrillation, care of spinal injuries, and oxygen therapy.

 

Upcoming Events

  • Winter, 2020 – Research Field Day. iCAN members will explore clinical research with a tour of different research labs, including the Sheikh Zayed Institute for Pediatric Surgical Innovation, and meet with prominent principal investigators at Children’s National. This event will help the iCAN members have a better understanding and appreciation for the development of a research idea: from inception in the lab to its introduction to the consumer market and beyond.

  • Spring, 2020 – Policy/Advocacy Field Day. iCAN members will explore how child health advocacy groups achieve their aims with lobbying, media campaigns, publicity stunts, polls, research, and policy briefings and, ultimately, influence public opinion and policies. This event will also include a tour of the United States Senate and Capitol buildings and an opportunity to meet with a congressman or congresswoman.

 

Frequently Asked Questions

Q: What is unique about your location?

A: Washington, DC a global epicenter for health advocacy. As an iCAN Hope for Henry/Children’s National member, you will have an opportunity to preview the world of medicine and research at a premier institution, while also advocating for change in the hospital clinic and research lab.

 

Q: What is Hope for Henry?

A: Hope for Henry is a DC-based organization focused on reinventing how hospital care of children, teens, and young adults through the use of innovative programs that entertain, reduce stress, and empower patients to be active participants in their own care. Founded in 2003 by Laurie Strongin and Allen Goldberg, Hope for Henry currently has programs  at hospitals throughout the country.

 

Q: If I join the iCAN Hope for Henry/Children’s National Chapter, what should I expect?

A: As a member of our chapter, you should expect to engage with hospitals, researchers, and other partners in the public and private sector, provide input on research ideas, innovative solutions, unmet pediatric needs and priorities, contribute to the design and implementation of clinical studies for children, and serve as a critical voice for children and families in the medical, research and innovation process

 

Q: Are you accepting new members?

A: Yes! We are accepting new members. Please contact one of the personnel below, and we will help you learn how to join.

 

Q: How frequently does your iCAN chapter meet?

A: Currently, we meet once a month to either (1) discuss and provide feedback on a specific project or idea or (2) attend a field day e.g., clinical, research, or policy/advocacy. 

 

Contact Information

 

Carolyn Fung

carolyn@hopeforhenry.org

 

Tre Schulbaum

tschulbau2@childrensnational.org

 

Dylan Marashi

dmarashi@childrensnational.org 

 

"What makes our iCAN KIDS Hope for Henry/Children's National Great"

After participating with iCAN, here is what one of our families shared:   

 

"She (iCAN youth member) absolutely loved it.  She found the experience to be very profound and in fact now wants to work be a psychologist in a hospital setting.”

To learn more about iCAN, joining or chapter or sponsoring an event, visit www.icanresearch.org or send an email to info@icanresearch.org.  

Support iCAN

Checks should be made payable to :

International Children's Advisory Network

317 Faw Lane

Marietta, GA 30060

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The International Children's Advisory Network is , Inc., (iCAN) is a tax exempt organization as described in Section 501(c)3 of the Internal Revenue Code