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iCAN’s Young Adult Professional Program (YAP) provides young

professionals in the first stages of their career, ages ~19 -29, with the tools, network opportunities, and community needed to excel as they transition from students to professionals.

iCAN is committed to empowering young people to become future leaders, researchers, innovators, advocates, and clinicians in the world of healthcare. No matter where one is in their growth and development, the YAP program will help develop necessary skills such as leadership and communication.

By connecting young people with their peers and the larger iCAN community, iCAN YAP empowers them to reach their full potential in their careers.

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RHIANNON PERRY

2022 iCAN Young Adult Professional Chair

Rhiannon Perry is 18 and from Manassas, Va. The recent high school grad is currently preparing to attend Mount St. Mary's University in the fall of 2022 with the hopes of majoring in Psychology and minoring in Criminology and Spanish. She loves to read and is looking forward to using her firsthand experience as a patient and clinical trial participant to advocate for patients and their families. She's currently working with Hope For Henry, a patient health advocacy organization, as a patient ambassador. Additionally, she continues to serve as a member in varies aspects of iCAN such as the patient advisory council and now as a young adult professional chair. 

Guides and Resources for Young Adults 

Healthcare Decision Making for Young Adults with Rare Diseases: A Resource Guide

  • This guide is developed by advocates in EveryLife Foundation’s Young Adult Rare Representatives (YARR) program. It contains advise on anything from setting up healthcare insurance to organizing information after a doctor's appointment.

  • Click the button below to learn more!

Financial Advocacy in RARE: Navigating the US Health System for Young Adults 

  • This guide provides information and tools to help you have purposeful conversations with your family and care providers about care transitions. These conversations can prepare you to make the transition into adult care, set health goals, and work with your adult care team.

  • Click the button below to learn more!

Taking Control from RARE: Gaining Independence as a Young Adult with a Rare Disease

  • This guide provides both detailed explanation and tools on steps to take as young adults approach adulthood while living with a rare disease. This tool kit is geared towards families and young adults and aims to help support them on topics such as building self confidence, managing treatment, understanding healthcare and much more!

  • Click the button below to learn more!

Internships, Scholarships, and Professional Opportunities
Have an opportunity you would like to share? Please email us at info@icanresearch.org

Teenagers

Young Adult Coalition

Open

It is estimated that more than 30 million Americans are living with one or more rare diseases, the majority of which are diagnosed in childhood. While scientific innovation offers much promise, still more than 93% of the 7,000 known rare diseases have no FDA-approved therapy. Yet, improvements in diagnostics, clinical care, and therapeutic interventions are transforming pediatric rare diseases into ‘pediatric-onset’ rare diseases and young adults are thriving decades into adulthood. However significant gaps remain as resources to support the transition to adulthood is often overlooked, leaving individuals feeling alone or isolated. The community relies on the resources available to them to help navigate benefit eligibility, the healthcare system, securing and managing caregivers, mental and emotional support, advocacy opportunities, and the general day-to-day challenges that may arise.

Although many resources exist, opportunities for cross-collaboration do not. The Young Adult Representatives of RDLA (YARR) would like to convene partners focused on serving young adults within the rare space. The Young Adult (YA) Coalition will serve as a platform for organization awareness, collaboration and problem solving so that we can all better support young adults with rare diseases.

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Intelligence Career Pathing

Ongoing

Visit Intelligence Community Student Careers to see the many ongoing options designed to support students in their learning.  This is an ongoing program and opportunities in STEM vary.  Visit the website to learn more.  

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DUKE Star Program

DUE: CLOSED

The Summer Training in Academic Research (STAR) Program provides a high-quality research experience for undergraduate students, high school students, and middle and high school teachers during the summer academic break.

Use the link below to learn more!

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Short Survey on Alopecia

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Help share your opinion on a short Alopecia survey - diagnosis NOT needed - from one of our wonderful iCAN Sponsors (our friends that help us support important programming like the 2022 iCAN Summit).  This survey has been created to help gain knowledge from our iCAN Community. 

 

We are asking that you share this survey so that youth members (and families) have time to take it.  It should take less than 20 minutes to complete.  All survey responses are due by June 15th, 2022.  

 

If you have any questions, please contact me at amyohmer@icanresearch.org. Thank you for helping our iCAN Community!   

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iCAN International Social Media Internship

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Virtual Internship, Based in Italy

Digital and social media represent an important source for gathering
and sharing information; specifically for health-related information. Early
research indicates that during the COVID-19 pandemic, the vast majority of social media users accessed science and technology content through social media. This is even more true when it comes to young people and teenagers, whose social media usage rates and the role exerted by social media platforms in their everyday life are much wider than those of the general population.

This position will provide a hands-on, participatory understanding of the global Clinical Research process, while offering further learnings in understanding global patient/provider needs, along with offering letter(s) of reference at internship completion. This internship is not paid.

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Young Doctor

Medical Intelligence and Innovation Institute Summer Internship Opportunities

Applications for Summer 2023 Open in February 2023

CHOC's MI3 is currently accepting applications for their summer internship through the end of the month. This is an amazing opportunity for college students interested in healthcare, data science and biomedical engineering fields.

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FDA Undergraduate and Graduate Opportunities

Ongoing 

The Food and Drug Administration is offering a variety of opportunities for students seeking learning and professional experience.  Click on the link below to view all open positions.  

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Undergraduate Pediatric Gene Therapy & Medical Ethics Internship

CLOSED

The Pediatric Gene Therapy & Medical Ethics (PGTME) and the Compassionate Use and Preapproval Access (CUPA) working groups, housed in the NYU Grossman School of Medicine Division of Medical Ethics, are thrilled to announce our undergraduate internships for the fall 2022 semester!

Undergraduate internships provide a paid opportunity for rising juniors and seniors to be exposed to real-world medical ethics research in a fast-paced academic setting. 

 

We encourage applications from candidates who will contribute to the diversity of the NYU Langone Health community and support our commitment to access and inclusion, as we seek to support the diversification of the bioethics workforce through early exposure of students to ethical issues and careers. Previous ethics coursework/experience is not required, but applicants should have an interest in medicine, public health, bioethics, genetics/genomics, rare diseases, philosophy/history of medicine, medical decision-making, or patient advocacy. Applicants must be fluent in written and spoken English and either be a US citizen or hold a working visa.

 

This is a wonderful opportunity for a student to work on a collaborative team of bioethicists, clinicians, patients and patient advocates, and members of the biopharmaceutical industry. For 10 hours per week, the intern will assist with research and administrative duties under the supervision of a working group project manager. Interns will become familiar with pertinent and real-world ethical issues and will hone their own research capabilities. Interns will also learn about potential careers and opportunities in the broader field of bioethics. 

 

Applicants should submit the following to cara.hunt@nyulangone.org by JUNE 17th @ 11:59 PM EDT:

 

1) Resume/CV

2) 1-page statement of interest

3) Writing sample of up to 4 pages (bioethics or health-related topics encouraged)

 

Please direct all questions to Cara.Hunt@nyulangone.org.

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Northwestern Mutual Internship

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Check out Northwestern Mutual's Internships.

"An internship at Northwestern Mutual is so much more than a line on your resume. With so many opportunities to learn, grow and stay with us after graduation, this is a jump start for your career.
 

While you’re here for the 10-week internship program you’ll enjoy learning from experienced professionals, plus more great perks that come along with being in a top 100 internship* program."

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