Projects & Opportunities

March 14th - April 10th, 2022

Join Children's Health and Share Your Videos - Phase 2 (must be registered in Phase 1 to participate) 

The Virtual Innov8 4 Kids Challenge is an event where teams rapidly create innovative solutions to common pediatric challenges while competing for prizes. Teams consist of high school / college students and professionals. Children’s Health invites you to join our second 2022 virtual challenge, partnering to advocate for innovation at Dallas-Fort Worth.

Ends: January 31, 2022

Give your input on Digital Health & Medical Technologies!

Are you:

  • 11-18 years old?

  • Do you have a health condition such as asthma, diabetes or epilepsy?

CYP Health Tech would like your input from young people aged 11-18 who have a health condition, and their parents or carers, in a project looking at how best to develop young people's health technology.

The first meeting will be online in November 2021

Email Jackie to find out more:

Jackie.martin-herry@york.ac.uk

To learn more about the project, click HERE

End: June 3, 2022

 Present Your Research at the 2022 Annual Southeastern Pediatric Research Conference 

Calling iCAN Youth Members -

Are you interested in presenting your research?

 

Then the 2022 Annual Southeastern Pediatric Research Conference is the perfect opportunity for you!

Click HERE to learn more about registration and submissions!

Click HERE to download the flyer.

Ends: December 27, 2021

 The MRCT Center Wants to Hear from YOU! 

Calling iCAN Youth Members -

The Multi-Regional Clinical Trials Center wants to hear from YOU about your experiences with Clinical Trials!

The MRCT Center would like to hear from iCAN Youth Members about their experiences with Clinical Trials for their next event! This opportunity would consist of being recorded via zoom with video on to answer a series of questions about your experiences with Clinical Trials. The questions will be provided beforehand so iCAN Youth Members are aware of what they will be asked.

If you are interested in this opportunity, please email info@icanresearch.org with the subject of the video being "Yes, I am interested in participating in the MRCT's video interview"

Any questions?  email info@icanresearch.org

Ends: December 4, 2021

Sign - Up For Monthly "Ask the Experts" 

Calling All iCAN Youth Members -

Dr. Anthony Chang and friends have a very exciting MONTHLY series of events for YOU!  Bring a friend, tune in and share your ideas about what you want to do in research, science, innovation and technology.  

Each month, iCAN and Dr. Chang will highlight a new topic for kids around the world to discuss and participate in fun sessions.  

Please note, some sessions require advance registration to give plenty of time to have items mailed to attendees.  Be sure to register for all sessions to make sure you are on the list!  

Any questions?  email info@icanresearch.org

Ends: November 30th, 2021

We are seeking (1) iCAN Youth Member to share their experience (15-20 minutes) of participating in Clinical Research for the virtual class; "Clinical Drug Development", Led by Dr. Collin Hovinga.  This will include any experience that the Youth Member has on agreeing to participate in clinical research, why they chose to participate, what the overall experience was like and any advice that they might have to future researchers about working with children/young people.  

 

To learn more about Professor Hovinga and his work through iACT and the University of Texas - Austin, please click this link:

https://www.iactc.org/team-member/collin-hovinga/

 

The date for the speaking event is flexible and the youth may choose from any Monday in November at 6:00 p.m. Central. 

 

We will fill this opportunity on a first come, first serve basis - so please let me know as soon as possible at amyohmer@icanresearch.org.  

Ends: October 30th, 2021

iCAN's very own Youth Member Olivia has been selected for the final round of voting for

Rare Artist 2021!

To help spread awareness of supporting our young artists and to vote for Olivia during the month of October, please visit: www.rareartist.org

Directions on How-To vote, visit www.RareArtist.org and complete registration.* You can register using your phone number or email.

  1. *Registration verifies that each person is voting once. You will be prompted to verify your email or phone number to vote.

 

  1. Once you are logged in, you will see the top 20 finalists and can select your favorite pieces.

  2. Click on any artwork to open the artist’s profile. In the artist profile, you can learn more about them, including their name, rare disease, and artist statement (their story).

  3. To view a larger image of the artwork, click on the artwork again in the artist profile.

  4. To vote for a piece, click the purple “vote” box under the artwork.

  5. You may vote for 12 pieces total, with a maximum of 3 votes per age group. You can only vote for each art piece one time.

 

  1. You may log in at any point during October to view your votes. Votes are not publicly displayed. Awardees will be announced the second week of November.

To learn more about EveryLife Foundation's Rare Artist Program and Olivia, click here.

Ends: October 2nd at 11:00AM

Sign Up for Ask the Experts on Big Dreams in Biomedicine

Calling All iCAN Youth Members -

Join Dr. Anthony Chang and special guest Dr. Arlyne Simon for an exciting session of Ask the Experts on Big Dreams and Biomedicine.

 

Dr. Arlyne Simon is a patented inventor, biomedical engineer, children's author, and entrepreneur.

 

Bring a friend, tune in and share your ideas about what you want to do in research, science, innovation and technology.  

Each month, iCAN and Dr. Chang will highlight a new topic for kids around the world to discuss and participate in fun sessions.  

Be sure to register for all sessions to make sure you are on the list!  

Go to our Videos page to view this session!

Any questions?  email info@icanresearch.org

Ends: October 24, 2021

KIDS Barcelona invites you to share your voice!

One young member of KIDS Barcelona is working with college colleagues about antibiotic resistance.

You can help!

Take this 5 minute survey:

https://forms.gle/Cbn1p1NKBP3fLCvB9

Any questions? Email info@icanresearch.org

Ends: July 19th, 2021

Do you have expertise on living with a heart condition?  

Calling All iCAN Youth Members -

The FDA is seeking two youth members and a young adult to share insight to living with a special medical condition.  Details are included on the link below. 

To learn more and sign up to participate, please send us an email at info@icanresearch.org.  

Hurry, this closes July 19th. 

Ends: July 16th, 2021

Register to Attend the "Jumo Health Presents the Virtual 2021 iCAN Summit!"

Calling All iCAN Youth Members -

Registration is OPEN for the Jumo Health Presents the Virtual 2021 iCAN Summit to be held online from July 12th- July 16th, 2021.  Free registration is available by visiting www.icanresearch.org.

All kids are welcome to attend!  

Register by June 1st and you will be eligible to receive fun conference materials mailed to your home.  

Any questions?  email info@icanresearch.org

Ends: March 24th, 2021

iCAN Youth Council Leadership Position is CLOSED

Are you interested developing into a leader at iCAN?  Do you like to help others?  Are you seeking new experiences to help your community and the greater pediatric healthcare network of research, science, innovation, advocacy and more?  Then you might be interested in becoming a iCAN Youth Council Leader.  

To submit your nomination for either yourself or an interested chapter representative, send an email to  info@icanresearch.org

Ends: January 30th, 2021

FDA Needs Kid Thoughts on Living with Rare Conditions

If you have been diagnosed with a rare condition and want to share your voice in a specially created video to help others understand what it is like to be a kid living with a challenging medical condition, than this is for you!  

The US Food and Drug Administration (FDA) has invited iCAN kids living with Rare Conditions to share their story in a video to be shown throughout the FDA 

To participate, please send an email to info@icanresearch.org with 'FDA Rare Conditions Video' in the subject line, and your name, age, medical condition in the email. We will reach out to you to help arrange a date and time for recording your expert patient video.  

Any questions?  email info@icanresearch.org

Due: February 18th, 2021

Looking to get involved? Check out KidsX Opportunities!

KidsX has some AMAZING opportunities for youth, both living with and without a current medical condition.

These opportunities involve robots, AI, digital therapeutics, virtual reality, gameplay, and much more!

If you are interested in providing feedback to cool digital health companies starting now to February 18, please check out the opportunities linked below to see if you qualify for any of the UX tests!

 

Click here to view the

KidsX Opportunities!

*Must have parental consent to participate in UX tests*

*Session will not be recorded*

 

Due:  January 29th, 2021

Learn from the Beauty Experts at Beauty Bus!

Beauty Bus is an incredible organization who works with celebrity makeup artists and provides in-depth tutorials for patients (off all ages), hospital staff, and caregivers, has offered to partner with Hope for Henry and iCAN to learn if they have a program that is impactful to patients and if so, how to grow their reach. 

 

Beauty Bus has asked that they host a makeup tutorial for DC iCAN and a limited number of other iCAN members across the country where everyone will get a bag of beauty products, learn from a celebrity makeup artist, and then get to share what they thought to their chapters about tutorial. 

This event will take place

February 11, 7pm-8pm EST

via Zoom

Please email amyohmer@icanresearch.org

if interested!

Due:  August 21st, 2020

What do you want us to know about kids and injections?  Help us improve the process for kids around the world - Take the survey!

iCAN is helping to create a better understanding of what kids need when dealing with injections.  

We invite all kids (and young adults) to help us by taking this survey.  

 

Enter this link in your browser or click below.  

https://www.surveymonkey.com/r/DD38T28

Due:  July 30th, 2020

Are You An Expert with These Conditions?  Read more to learn how you can help.

We have a sponsoring partner that has asked if there are any iCAN youth members living with the following rare diseases:

  • Alexander (neurological)

  • Lafora (epilepsy)

  • Pompe (lysosomal storage)

 

The partner would like to engage in a brief patient-voice focus group with the kiddo(s) and ask the following questions.  Parents/Guardian/Siblings are invited to join in as well.  The date and time will be set after I receive response (just email me directly with youth member information) by July 30th

Due:  EXTENDED September 30th, 2020

Parents and Kids - Share Your Voice In a Survey

Your help is needed! Share your experiences of using devices (e.g. measuring spoons, dosing cups, inhalers) to take medicine.

The European Paediatric Formulation Initiative (EuPFI) works to improve the preparation of better and safe medicines for children. One area they are interested in is the “gadgets” or devices (e.g. measuring spoons, dosing cups, inhalers) that are used to help patients take their medicine.

They are doing a research study to find out what kind of gadgets kids and young people use to take their medicines and how easy they find using them, to help find ways of making the devices more user friendly.

PARENTS/CAREGIVERS and YOUTH MEMBERS are invited to help with this project and share your experiences, by taking part in a short survey:  https://tinyurl.com/eupfican-devices-survey  

Due:  June 10th, 2020

Calling all Kid Science and Medicine Buffs, Actors, and Actresses

We have a very fun opportunity for kids that have a passion in medicine and science, and also, feel comfortable in front of a camera answering questions and reading a script.  If this fits you, please reach out by July 30th, 2020 to let us know so we can pair you up with the Pediatric Trials Network to share your expertise!

Due:  June 30th, 2020

Introducing Virtual 'iCAN Leanne'!

iCAN President Leanne is missing her friends at iCAN, so we decided to have some fun and introduce virtual 'iCAN Leanne" to share the fun of what our youth members and adults are doing around the world.  To participate in this project, download, print or simply share iCAN Leanne in a picture that shows where you are or what you are doing during the time of the pandemic.  iCAN is excited to share your voice and to help remind the world of the many great things that our iCAN community is doing.  Send your pictures to info@iCANResearch.org and we will feature on our website.

Due: April 30th, 2020

Youth Speaker Panel Needed

If you are a youth member of iCAN and would like to be a part of a panel of youth speakers at the upcoming May 18th, 2020 virtual conference for the International Society of Pediatric Innovation (iSPI) during a session led by iCAN President, Leanne West, we would love to hear from you.  Four youth members will be considered.  Sign up today!  

Due: April 30th, 2020

Join a Virtual Council for Young Adults living with Epilepsy

KIDS Illinois and Lurie Children’s Epilepsy Center are currently working with the American Academy of Pediatrics (AAP) on a research project called Transforming Health Care for Children and Youth with Epilepsy (CYE).

 

For this project, the AAP would like to create a Council for Young Adults with Epilepsy across the United States. This will be a virtual council and the participants on this council will need be 18 years and older… or turning 18 very soon.

 

If interested, complete this very short survey:  https://www.surveymonkey.com/r/QPMQBWY.

Due: March 30th, 2020

Participate in Online Focus Group

iCAN Youth Members living with chronic or rare conditions are invited to participate in an online focus group with iCAN/UCB/Mindspot in an interactive, fun portal, while at home.  The event is scheduled for May, 2020 but we need you to sign up today.  Spaces are limited, so hurry! 

Due: January 15, 2019

Be A Researcher Part 2.

iCAN Youth Members and Adults are asked to help the Pediatric Trials Network (PTN) by reviewing language in a CONSENT.   

 

Please review the documents using the attached survey and share your feedback to the wording.  We want to know if it is understandable and easy-to-read, or if not, tell us.  Thank you for your help!   

Due: October 31st, 2019

FDA Patient and Caregiver Connection Program 

iCAN would like to help the FDA to promote the Patient and Caregiver Connection program by sharing your experience with specific diseases and devices. The goal of sharing this information is to better understand the youth population.  This survey is less than 4 minutes long.  

Due: October 25 - Oct 29, 2019

AAP Conference

We are looking for youth interested in representing iCAN at the American Academy of Pediatrics conference. You will present our organization at the iCAN booth. A parent or guardian must accompany each iCAN youth member. This event will be held in New Orleans, Louisiana.

Due:  August 30th, 2019 

Take the NORD Survey 

NORD's Policy team is conducting a survey to help guide our future work. We invite you to take a moment to share your experience to help us better prioritize the needs of rare disease patients and families just like you--by taking the survey below.

CLOSED

Aug 18- Aug 20, 2019

PEDS2040

We are seeking youth members to attend the PEDS2040 Conference https://peds2040.orgin Huntington Beach, CA. Youth members will be asked to work at an iCAN table and attend or assist with the Young Inventor Workshop. A parent or guardian must accompany each iCAN youth member.

CLOSED

February 1st -March 14th, 2022

Join Children's Health in 2022 HackaThon - Phase 1 Register and Share Your Ideas

Children's Health is hosting its annual “Innov8 4 Kids Challenge", calling all middle school, high school, college, and professional developers to bring their best innovation.

Help us innovate to improve healthcare for kids! Challenges include: - Gamifying Patient Education - Video and Content Creation - Culinary Cook-Off - Robotics for Healthcare

End: February 26, 2022

 Join a Focus Group on Diversity & Inclusion 

Calling iCAN Youth Members -

PTN (the Pediatric Trials Network) wants to meet with you to discuss diversity & inclusion! 

 

PTN would like to create a video that highlights the need for diversity and inclusion from kids about kids for PTN. The video will be freely shared across all networks to spotlight the need for dedication of inclusion and diversity to ensure the best representation of kids and to create the best possible outcomes within pediatric clinical research.

 

This opportunity would consist of being recorded via zoom with video on to answer a series of questions about diversity & inclusion in a focus group setting. The questions that will be asked will be provided before the event, so you will have time to review the questions before the focus group.

If you are interested in this opportunity, please email info@icanresearch.org with the subject of the video being "Yes, I am interested in participating in the PTN Focus Group"

Any questions?  email info@icanresearch.org

ALL YEAR OPPORTUNITY

 Sign - Up For 2022 Monthly "Ask the Experts"  

Calling All iCAN Youth Members -

Dr. Anthony Chang and friends have a very exciting MONTHLY series of events for YOU!  Bring a friend, tune in and share your ideas about what you want to do in research, science, innovation and technology.  

Each month, iCAN and Dr. Chang will highlight a new topic for kids around the world to discuss and participate in fun sessions.  

Please note, some sessions require advance registration to give plenty of time to have items mailed to attendees.  Be sure to register for all sessions to make sure you are on the list!