Projects & Opportunities

Ends: July 19th, 2021

Do you have expertise on living with a heart condition?  

Calling All iCAN Youth Members -

The FDA is seeking two youth members and a young adult to share insight to living with a special medical condition.  Details are included on the link below. 

To learn more and sign up to participate, please send us an email at info@icanresearch.org.  

Hurry, this closed by July 19th. 

Ends: July 16th, 2021

Register to Attend the "Jumo Health Presents the Virtual 2021 iCAN Summit!"

Calling All iCAN Youth Members -

Registration is OPEN for the Jumo Health Presents the Virtual 2021 iCAN Summit to be held online from July 12th- July 16th, 2021.  Free registration is available by visiting www.icanresearch.org.

All kids are welcome to attend!  

Register by June 1st and you will be eligible to receive fun conference materials mailed to your home.  

Any questions?  email info@icanresearch.org

Ends: June 21st, 2021

Celebrate International Yoga Day with a Virtual Yoga Class!

Join Remember The Girls & Move2Advocate for fun and relaxing Virtual Yoga Class!

The class will be led by Elisabeth Parker from Move2Advocate.

The Virtual Yoga Class will be available on Remember The Girls Facebook page live on Monday June 21st at 4PM Pacific Time/7PM Eastern Time!

Due: February 25th, 2021

Telemedicine Event

Interested in speaking about your wearable and/or COVID19?

Then you just might be the perfect fit for a Telemedicine Webinar on March 25!

The webinar will have clinicians and researchers, including our very own President Leanne West, who are interested in how telemedicine will look in the future with wearables, as well as how covid has changed the timeline for telemedicine and what we’ve learned!

If interested, contact us at:

info@icanresearch.org

Ends: March 17, 2021

Share your Clinical Research Expertise with iCAN

iCAN is working on a very important project in which we are capturing youth expertise and experiences on clinical research through recorded videos. 

 

The goal of this project is to provide a curriculum for other kids (and adults) that want to better understand clinical research and what that means to kids.  

The questions will be made into mini videos to help other kids understand "what is clinical research" or "what is an assent", etc..  You can answer the questions, which are linked below, in your own words using your own experiences.

 

The answer to each individual question can be very short - may 20 or 30 seconds max.  When you record, we can take the list and edit ourselves, so feel free to make one continuous recording. 

Clinical Research Questions

Any questions?Email

clairedestrampe@icanresearch.org

Due: March 31st, 2021

Take our survey from EPTRI

New EPTRI survey that has been reviewed by KIDS Italy, KIDS Albania, and KIDS Barcelona to create language that is comprehensible and child-friendly.

 

The survey is aimed at collecting data on preference of dosage forms for guiding the development of age-appropriate medicines. It was reviewed and translated by the YPAGs of Albania, Barcelona and Bari and is addressed to boys and girls up to 18 years of age. 

 

The survey is still open and available in 9 languages:

Due:  January 31st, 2021

Hey Kids - Check out this Assent Survey!

Hello members, get ready for a new survey!

This questionnaire will be used by iCAN to better understand kid thoughts on the following Assent Templates.

 

The goal for gathering this information is to ensure that all kids in the age ranges are able to understand the Assent Templates!

Check the links below to access your corresponding Assent Survey!

Ages 3-6: Click here

Ages 7-12: Click here

Ages 13-18: Click here

Due:  August 30th, 2020

iCAN Youth Council Wants to Know... take a survey!

iCAN's youth council is conducting a study on how the COVID-19 pandemic has affected aspects of your life. Whether remote learning hampered your learning experience or quarantine reduced your ability to receive necessary medication, we want to hear from YOU. It will take less than 2 minutes of your time but your feedback will be invaluable in helping policy makers. 

 

If you have any questions please feel free to contact Ananya Ganesh at agan1213@gmail.com. Thank you!

Survey in link below:

Due:  August 21st, 2020

Take the Survey to Tell Us What You Want for the Next Event

Dr. Anthony Chang from iSPI and AIMed would like to create a series of talks designed for kids to share their voices.  

To help us better design these sessions, we need iCAN Youth Member Feedback.  

Take the survey below by Friday, August 21, 2020 to help us create the best event!  

Due:  June 30th, 2020

Share Your Story 

Eli Lilly and Company (Lilly) is partnering with iCAN to feature art created by iCAN members under the age of 18.  Every submission that meets the criteria below will appear on the newly created website for pediatric research on Lilly TrialGuide.  The iCAN leadership team will also include the images on the iCAN website.

We would like you to submit an image that reflects your experience with healthcare, whether a photo, drawing, sketch, poem, etc.  Please check out the attached flyer.  The key is to be creative and tell your story.

Here are the criteria for submission:

Due:  July 22nd, 2020

Kids - Take the OHANA Study Survey

Your voice matters!  We have many ideas for sharing information about a pediatric clinical research study and need your help to better understand what children around the world need.  To take this brief study, visit SURVEY IS CLOSED 6/22/20 or click on the link below.  Hurry, this survey is closing soon!

Due:  June 12th, 2020

Young Authors Wanted

Calling all young authors for a chance to win a trip to Philadelphia to visit The College of Physicians of Philadelphia, CHOP Research Institute and $1,0000 cash prize.  To enter, learn about Dr. Hilleman, and write a 500-600 word essay that answers the question, “How was Dr. Hilleman’s integrity important to his success, and how is integrity important to you?” Essay should be written in English using complete sentences and appropriate grammar. One entry per person.  Application through the link below.  Good luck!  

Due: April 30th, 2020

Adult and Youth living with Rare Disease to Participate in Virtual Global Conference 

iCAN has partnered to share one youth voice and one adult voice during from 11:00 am - 12:00 noon, eastern time, on May 20th, 2020 during a virtual event dedicated to Rare Disease.  If you are diagnosed with a Rare Condition and would like to take part in this virtual experience through sharing your personal journey, participation in clinical research and iCAN, we would love to hear from you.  Contact us today to learn more.   

Due: April 30th, 2020

CANCELLED Due to FREE Virtual Summit - iCAN Summit Scholarship

iCAN Youth Members may be eligible to earn one of two scholarship(s) in memory of two special iCAN Youth Members; Kate and Felix.  The scholarships are created to support attendance at the 2020 iCAN Research Summit in Lyon, France from July 14th to July 18th, 2020.  Click on the link to see the rules and how to apply.  We can't wait to see what you do!  Good luck! 

Due: EXTENDED March 30th, 2020

Join iCAN Youth Council

Calling all iCAN youth!!  Are you interested in joining a fun group  of collaborative innovators interested in learning more about pediatric medicine and advocacy in healthcare?  Then, join us at iCAN Youth Council.  If you are interested, please send a message to the 2020 iCAN Youth Council Leader, Ananya Ganesh at agan1213@gmail.com  - We hope to hear your voice. 

Due: Until Full

Be a Beta Tester

Our partner, Thrust, is looking for iCAN Youth Members to help with beta testing. 

 

In game development, before releasing the game officially, it is often first released in two stages called the alpha and beta phases. In the beta phase, the game is likely to contain a number of issues and bugs and we need your help to make sure we find them all! We’ll also value any and all input you have to make our game as fun as possible! 

Due: October 21st, 2019

Two Parent Advisors Needed

In partnership with the Pediatric Trials Network (PTN), we are seeking two parents of young children that have experienced acute pain. The two selected parents will be asked to join the external advisory board for the Clinical Outcome Assessments for Acute Pain Therapeutics in Infants and young Children (COA-APTIC), aimed at developing a core set of clinical outcomes assessments for infants and young children (0 – 2 years of age) undergoing treatment for acute pain.  To participate, please send an email using the link below.  

Due: October 3rd, 2019 

FDA Meeting in Maryland

Attention: YOUTH MEMBERS LIVING WITH A RARE CONDITION!!!!

 

We need 3-4 youth diagnosed with a RARE illness, ages 8 -19 to particpate in an all-expense paid trip to "Advancing the Development of Pediatric Therapeutics (ADEPT 6) Workshop", November 11th-12th, 2019.

This will include time as part of speaking panel, plus personal interviews.  Questions to be provided in advance.  Must be willing to share diagnosis.  

Sign up by Aug 28th, 2019  

Panelists for Georgia Bio

iCAN is looking for four kids to tell their stories on "Empowering the Patient"  October 8 at 3:30 PM at the Cobb Galleria, Atlanta, GA. 

CLOSED

Ends: July 19th, 2021

Kids - What's on Your Wish List?

Calling All iCAN Youth Members -

The AAP (American Academy of Pediatrics) wants to know what is on your medical wish list!

Please click below to fill out the survey before the AAP's session at Jumo Health Presents the 2021 iCAN Virtual Summit on Tuesday July 13th!

To learn more about the summit, head to our 2021 Summit page!

Ends: ALL YEAR OPPORTUNITY

Sign - Up For Monthly "Ask the Experts" 

Calling All iCAN Youth Members -

Dr. Anthony Chang and friends have a very exciting MONTHLY series of events for YOU!  Bring a friend, tune in and share your ideas about what you want to do in research, science, innovation and technology.  

Each month, iCAN and Dr. Chang will highlight a new topic for kids around the world to discuss and participate in fun sessions.  

Please note, some sessions require advance registration to give plenty of time to have items mailed to attendees.  Be sure to register for all sessions to make sure you are on the list!  

Any questions?  email info@icanresearch.org

Ends: May 24, 2021

Help Select the Winner of the Mobile World Capital Hackathon!

Mobile World Capital will run a hackathon in parallel in both Barcelona, Spain and Boston, USA.  

This is open to anyone based in Barcelona or Boston with an interest in improving children's experience at the hospital: creatives, storytellers, educators, technologists, psychologists, etc. 

Begonya and KIDS Barcelona have been involved in co-creating the five challenges as group mentors and will then be leaders in selecting the winners of the hackathon.  

To help KIDS Barcelona with selection of the winners, iCAN has been included to participate as part of the final selection jury for the top ten finalists. 

 

The voting will be online and the platform is being finalized, with details to come soon. 

To sign up: 

JOIN Hack The Hospital (May 21-23)  www.5Gtransatlanticlab.com/apply

It is expected that there will be up to 150 participants per city (applications are in teams up to 3 people per city) with a focus on 50 teams of 6 people (3 from Barcelona - 3 from Boston) sharing new ideas for kids.

The teams are focused on the following challenge areas (education, family, socialization, entertainment and mental health), in which they will create technology programs to support long-term adolescent (teen) hospital patients. 

The 2021 Mobile World Capital International Hackathon, Mobile World Capital is an  IT organization that organizes every year in Barcelona for the "Mobile World Congress". 

Inspiration Talks - LinkedIn events calendar:
WEEK 1 
May 10 - 5G and Emerging Technologies: how can they impact the hospital experience 
May 11 - Storytelling and Engagement for Kids
May 12 - Good Centric Design and Social Impact
May 13 - Ubiquitous UX Design for Youth

WEEK 2

May 17 - Innovation for and with pediatric patients
May 18 - From Digital to Spatial Health
May 19 - IoT, Identity and Big Data
May 20 - Augmented Senses

Due: February 27, 2021

Covance Rare Conditions & Pediatric Clinical Trials Video Opportunity!

Looking to voice your passion of rare conditions and pediatric clinical trials? Then we have the perfect opportunity for you!

Have your voice heard by individuals from LabCorp and Covance on your passion and interest for rare disease and pediatric clinical trials.

 

If you are interested in participating in this amazing discussion via the web in March or April of 2021, please contact us at:

info@icanresearch.org

Due:  EXTENDED February 28th, 2021

Hey Kids - iCAN is Writing A Book - share your story

On July 2nd, 2020, the iCAN Youth Council will be collecting youth "iCAN" statements to share what kids around the world have done to change their challenges into "I CAN!!!!" 

 

Simply write up your statement to show how you made a difficulty into a success using just 3-4 sentences. Illustrations are welcomed too.  

 

Share back to info@iCANResearch.org

Due: March 30th, 2021

iCAN Youth Council Has New Research Opportunity 

This survey based project will provide us with valuable insights as to what worked and what did not and also go a long way in helping stakeholders and health care providers recognize and prepare for challenges faced by youth with chronic illness/disabilities during times of crisis.

Please take the survey and share to all of your classmates and friends.  Use the link below to take the survey. 

All ages:  Click here

For questions, please contact iCAN Youth Council Leader, Ananya Ganesh at agan1213@gmail.com 

Due:  January 18th, 2021

Hey Kids - AND Parents Too!

Join us for a fun event in which we will review DigiKnowIt materials and website through an interactive focus group.  

This is a fun project for the new year. 

 

iCAN has been invited to share our voices in a teen panel and a parent panel. All voices around the globe are invited! You do not need to have been diagnosed with a medical condition to participate. All you need is a computer or cell phone that can provide access to dial-in.  Video is needed to see the DigiKnowIt News website as you will be asked your thoughts about the content in order to help other kids and families.  

 

We plan to host the Advisory Panels on Saturday, January 30th, 2021. The teen panel will be 11am to 12pm and the parent panel will be 12:30pm to 1:30pm.

RSVP to info@icanresearch.org

Due: April 30, 2021

Take our survey from EuPFI

Due:  July 30th, 2020

Take 2 - Are you a kid actor, science buff or want to be a doctor?  

We have a very fun opportunity for kids that have a passion in medicine and science, and also, feel comfortable in front of a camera answering questions and reading a script.  If this fits you, please reach out by July 30th, 2020 to let us know so we can pair you up with the Pediatric Trials Network to share your expertise!

Due:  July 4th, 2020

iCAN Summit - Chapter Poster

While we know that your time this year was cut short with your iCAN chapter friends due to sheltering-in-place around the world, we would still love to share the good work at each chapter.  To share your work, we would like you to create a poster with your chapter name, the iCAN logo, and pictures showing what you worked on.  We need one poster per chapter and will share them during the summit.  To submit your poster, send it to info@icanresearch.org

Due:  June 5th, 2020

Take a 2 - Minute Survey 

iCAN, in partnership with a team of clinical researchers, has a very brief survey on naming a potential new clinical research project for teens.  Kids, please take a moment to share your voice and help be part of the future.  It will take less than 2-minutes to complete and may be done through the link below, on any device.  

Due:  June 30th, 2020

Take A SnapShot of What You are Doing At Home to Stay Safe and Healthy 

During this time, many of our youth members are 'sheltering-in-place' at home.  iCAN would like to share what our members are doing to stay busy.  Take a picture and share to info@icanresearch.org what you are working on... doing homework, helping your neighbors, cooking with your family, taking care of pets, or other interesting things.  We will share your picture with the tag #iCANMakeADifference to help inspire others.  #TogetherweCan #iCAN

Due: April 30th, 2020

Share your expert voice and tell us what you think about a new Pediatric Clinical Research project

Calling all iCAN Youth Members - are you ready to help share your expertise? Join in and take a quick survey to help guide pediatric clinical research. 

#iCANMakeADifference

Due: April 15th, 2020

Share Your Expert Voice and Join a Fun Virtual Focus Group

Join in for a fun and exciting event! 

 

PARENTS:

Tuesday, April 14th at 5:00pm EST

 

Please join my meeting from your computer, tablet or smartphone:
https://global.gotomeeting.com/join/892841485

You can also dial in using your phone for audio if needed:
United States: +1 (872) 240-3412
Access Code: 892-841-485

YOUTH MEMBERS: 

Wednesday, April 15th at 4:00pm EST

Please join my meeting from your computer, tablet or smartphone.
https://global.gotomeeting.com/join/636260701

You can also dial in using your phone.
United States: +1 (872) 240-3212
Access Code: 636-260-701

Due: January 15, 2019

Be A Researcher Part 1.

iCAN Youth Members and Adults are asked to help the Pediatric Trials Network (PTN) by reviewing language in an ASSENT.   

 

Please review the documents using the attached survey and share your feedback to the wording.  We want to know if it is understandable and easy-to-read, or if not, tell us.  Thank you for your help!   

Due: Until full

iCAN Asthma Kids

Thrust Interactive is developing a gamified asthma app that empowers kids (and parents), by providing personalized support to help make managing asthma as simple and easy as possible. Treks identifies the challenges that a child has with treatment adherence and guides them on a personalized treatment support journey in an engaging and motivational way.


Treks is currently in development and we need your help! We need feedback from kids and parents to help us make Treks as fun and engaging as possible. To get that feedback we are inviting iCAN members to join the Treks Asthma Advisory Council. As part of this select group, you will have the opportunity to share your thoughts and provide product direction. You will get a first look at Treks and when it's ready for testing, you will get to try it out for yourself. During this time, we may send out short surveys, and ask you to text us your ideas as they come to mind, or schedule a phone call with us and others on the Advisory Council to brainstorm ideas on how to make Treks better.


If you're interested, please reach out directly to our Director of Innovation and Research, Shane Owens at shane@th.ru.st. Thank you for your consideration!

Due: October 15th, 2019 

Clinical Study Survey

iCAN has a new opportunity for kids ages 1-17 (parents can share on behalf of younger ones) to share their voice through a special survey designed just for them.  To take the survey, click below.  Your thoughts matter!  

Due September 5th, 2019  

Take our iCAN Partner Survey

iCAN invites you to take our Partner Survey and share your voice.  To take the survey, please click below.  

Due:  August 12-25, 2019 

PARADIGM Interviews

One of our international community partners, PARADIGM, would like some feedback to better understand what kids think of research, so that they can more effectively help to promote 'patient-centered care' that supports our young person.  Attached are two informational sheets - one for kids and one for parents. 

CLOSED

Ends: July 16th, 2021

Kids - Enter the Rare Artist Contest 

Calling All iCAN Youth Members -

Rare Artist Contest now open for Submission -  create your own account and edit your entries up until the deadline on July 16th, 2021. Start your entry at https://rareartist.awardsplatform.com/?eType=EmailBlastContent&eId=3b86ad95-96fa-4237-8281-f3c6258e755a

All awardees will receive a cash prize of $500.   After the judges narrow contest participants down to 20 finalists, we’re asking the community to make the final decision on who are the top 10 Rare Artists for 2021.

20 Finalists will be hand-picked by The Rare Artist judges and notified by August 18th, 2021. Finalists' artwork and artist profile will be announced publicly and able to vote on October 1st. The public will have until October 29th to decide on the top 10 artists.

10 Awardees will receive a cash prize and an opportunity to come to Washington, DC to display their artwork at the Rare Artist Reception during Rare Disease Week on Capitol Hill 2022.

2 children (ages 4-11) – $500 each

2 teens (ages 12-19) – $500 each

3 young adults (ages 20-30)  – $500 each

3 adults (ages 31+) – $500 each

Any questions?  email info@icanresearch.org

Ends: August, 2021

Share Your Medical Device Experiences with AIMed

Are you interested in sharing your experiences with your medical device? Then you might be the perfect fit to share your story at the AIMed Conference Series!

The events take place on:

March 30, from 11-11:30 EST - SPOT FILLED

June 29, from 11-11:30 EST -

SPOT FILLED 

September 28, from 11-11:30 EST

If you are interested, please send an email to info@icanresearch.org with the subject "AIMed Talk", your name, medical device, a photo, and what day of the series you would like to speak at. 

Before the event, we will have a practice session

Any questions? Email info@icanresearch.org

Ends: March 24th, 2021

iCAN Youth Council Leadership Position is CLOSED

Are you interested developing into a leader at iCAN?  Do you like to help others?  Are you seeking new experiences to help your community and the greater pediatric healthcare network of research, science, innovation, advocacy and more?  Then you might be interested in becoming a iCAN Youth Council Leader.  

To submit your nomination for either yourself or an interested chapter representative, send an email to  info@icanresearch.org

Ends: January 30th, 2021

FDA Needs Kid Thoughts on Living with Rare Conditions

If you have been diagnosed with a rare condition and want to share your voice in a specially created video to help others understand what it is like to be a kid living with a challenging medical condition, than this is for you!  

The US Food and Drug Administration (FDA) has invited iCAN kids living with Rare Conditions to share their story in a video to be shown throughout the FDA 

To participate, please send an email to info@icanresearch.org with 'FDA Rare Conditions Video' in the subject line, and your name, age, medical condition in the email. We will reach out to you to help arrange a date and time for recording your expert patient video.  

Any questions?  email info@icanresearch.org

Due: February 18th, 2021

Looking to get involved? Check out KidsX Opportunities!

KidsX has some AMAZING opportunities for youth, both living with and without a current medical condition.

These opportunities involve robots, AI, digital therapeutics, virtual reality, gameplay, and much more!

If you are interested in providing feedback to cool digital health companies starting now to February 18, please check out the opportunities linked below to see if you qualify for any of the UX tests!

 

Click here to view the

KidsX Opportunities!

*Must have parental consent to participate in UX tests*

*Session will not be recorded*