Projects & Opportunities

Learning with Tablets

Ends: July 1, 2022

 Short Survey on Lyme Disease 

Help share your opinion on a short Lyme Disease survey - diagnosis NOT needed - from one of our wonderful iCAN Sponsors (our friends that help us support important programming like the 2022 iCAN Summit).  This survey has been created to help gain knowledge from our iCAN Community. 

 

We are asking that you share this survey so that youth members (and families) have time to take it.  It should take less than 12 minutes to complete.  All survey responses are due by July 1st, 2022.  

 

If you have any questions, please contact me at amyohmer@icanresearch.org. Thank you for helping our iCAN Community!   

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End: November, 2022

 Symposium Speaker Needed 

Calling iCAN Youth Members:

An awesome speaking opportunity for a symposium is available for one amazing youth member.

You must have:

  • Participated in a clinical research trial

  • A diagnosed condition in one of the following therapeutic areas:

    • Childhood Cancer

    • Diabetes

    • Autoimmune Conditions

    • Gastro Intestinal Conditions

 

The symposium will take place the beginning of November, 2022 in person, with more details to come. 

If you are interested, email info@icanresearch.org

with the subject "Interest in Symposium Speaking Opportunity".

Beautiful Young Artist

Submissions Due: July 13, 2022

 Rare Artist Contest 

The Rare Artist Program was established in 2010 to exhibit the unique gifts of individuals impacted by rare disease to tell their story through art. Now in year 12, the Rare Artist Annual Contest is focused on providing a national platform for artists to advocate for the rare disease community through visual artwork and powerful artist statements.

Eligibility

  • Participants are required to be part of the rare disease ecosystem, meaning you or someone you know is impacted by rare disease. 

  • Participants are required to have a US residency. 

  • Click here for additional guidelines

How to Enter

  • The Contest will be open for submissions from June 1 through July 13, 2022 on the Rare Artist submission platform. All participants are required to complete an artist profile including contact information, age, and rare disease affiliation, provide an artist statement, and submit a photo of the artwork. For guidance on how to enter, please visit RareArtist.org

Prizes

  • The Rare Artist Contest awards 10 artists, including children, teens, young adults, and adults. 

*New this year* 

  • Pre-determined numbers of awardees per age group will no longer be in effect. However, at least one artist per age group will be awarded.  

  • Each awardee will receive a $500 cash prize and a travel stipend to attend Rare Disease Week 2023 in Washington, D.C., where their art will be showcased on Capitol Hill at the Rare Artist Reception. Click here for more prize information

Social Media Contest

  • After you enter the Rare Artist Contest, share your rare on social media for your chance to win one of two $50 e-gift cards to BLICK Art Supply Store

  • To enter the Social Media Contest, use this Canva template, add your artwork, and share on social media using #rareartist. 

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End: June 4, 2022

iCAN Fundraiser: Baseball For Kids Fundraiser

The International Children's Advisory Network, Inc. (iCAN) and KIDS Connecticut Chapter are hosting an exciting family-friendly fundraiser in partnership with the New Britain Bees collegiate baseball team.  TICKET SALES ARE LIVE!!!!  

 

Everyone is invited to join in the outdoor baseball fun on June 4th, 2022 at 6:35 p.m. EST as the Bees take on the Lake Monsters in-person at the New Britain Stadium, located at 230 John Karbonic Way, New Britain, CT 06051.  THIS IS AN IN-PERSON EVENT and TICKET SALES ARE ONLINE STARTING 1/27/2022 - 6/4/2022.  

 

To generously support iCAN, advanced ticket sales are available online at https://nb1.glitnirticketing.com/nbticket/web/logingroup1.php using the special password iCAN.

If you can't attend but still want to help, consider making a donation to iCAN at www.icanresearch.org.  Simply scroll to the bottom of the page and select our safe and secure link.  Every donation helps us to support the important projects and opportunities that are needed for children everywhere, including those living with rare, chronic, complicated conditions.

Who is invited to the iCAN charity game?: EVERYONE (iCAN Youth Members, Friends, Parents, Families, Teachers, Coaches, Sports Teams, School Groups, Church Groups, Hospitals, Doctors, Researchers, Nurses, and Neighbors to name a few) and anyone that loves baseball!) is invited to join in the fun.  Spread the word!  Each ticket sale helps iCAN!

 

When is the iCAN charity game?:   This special game will be held on June 4th, 2022 at 6:35 p.m. EST as the Bees take on the Lake Monsters at the New Britain Stadium.

 

How do I buy tickets?:  To buy tickets, all tickets must be purchased online, using the password iCAN. The link is below.

Click Herehttps://nb1.glitnirticketing.com/nbticket/web/logingroup1.php

Enter the Password: iCAN

 

I want to help but I do not live nearby. Can I still support iCAN?:  You can still buy tickets!  Each ticket is $8.00 and you can buy a ticket to donate to children that can not afford to attend.  To do so, please contact iCAN at info@icanresearch.org to make a donation today.

 

Do I need to buy tickets online and use the password?:  Yes!  The online sale and password will indicate how many tickets were sold and how much will be donated to iCAN.  Please use this link for all purchases:

Click Herehttps://nb1.glitnirticketing.com/nbticket/web/logingroup1.php

Enter the Password: iCAN

Do you have a link to the stadium for directions?:  To make it easy, here is a link to the New Britain Bees homepage, schedule and other information.  https://nbbees.com/home/

 

I want to join iCAN.  How do I get involved?:  To join iCAN, simply send an email with your name, age (if a young person), and the state you are from.  We will match you up to an iCAN chapter nearby.  It is free, fun and open to all kids from anywhere.

 

Thank you for supporting this iCAN Fundraiser.  We hope everyone enjoys a fun afternoon at the ballpark!  To learn more about iCAN, visit www.icanresearch.org.

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ALL YEAR OPPORTUNITY

 Ask the Experts 

Calling All iCAN Youth Members -

Dr. Anthony Chang and friends have a very exciting MONTHLY series of events for YOU!  Bring a friend, tune in and share your ideas about what you want to do in research, science, innovation and technology.  

Each month, iCAN and Dr. Chang will highlight a new topic for kids around the world to discuss and participate in fun sessions.  

Please note, some sessions require advance registration to give plenty of time to have items mailed to attendees.  Be sure to register for all sessions to make sure you are on the list!  

Any questions?  email info@icanresearch.org

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End: May 21, 2022

 Join iCAN & Friends for

Ask the Experts! 

Join iCAN and friends on Saturday, May 21st at 10:00 a.m. EST at ‘Ask the Experts’ on Advisors vs. Advocates.

 

To register and to receive your zoom link, visit www.iCANResearch.org/events

 

This is a free 1 hour zoom session and kids can bring friends to join in.  It’s a great time for young people to meet experts, share ideas, talk about important topics, and have fun connecting.  

 

If you have questions on the event, please send them to info@icanresearch.org and we will help to get you started.  

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End: April 16, 2022

 Join iCAN & Friends for

Ask the Experts! 

Join iCAN and friends on Saturday, April 16th at 10:00 a.m. EST at ‘Ask the Experts’ on Pediatric Innovation with special guests Dawn Wolff and Mickey Fokken.

 

To register and to receive your zoom link, visit www.iCANResearch.org/events

 

This is a free 1 hour zoom session and kids can bring friends to join in.  It’s a great time for young people to meet experts, share ideas, talk about important topics, and have fun connecting.  

 

If you have questions on the event, please send them to info@icanresearch.org and we will help to get you started.  

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February 1st -March 14th, 2022

Join Children's Health in 2022 HackaThon - Phase 1 Register and Share Your Ideas

Children's Health is hosting its annual “Innov8 4 Kids Challenge", calling all middle school, high school, college, and professional developers to bring their best innovation.

Help us innovate to improve healthcare for kids! Challenges include: - Gamifying Patient Education - Video and Content Creation - Culinary Cook-Off - Robotics for Healthcare

Click here​ to download the flyer!

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Ends: January 31, 2022

Give your input on Digital Health & Medical Technologies!

Are you:

  • 11-18 years old?

  • Do you have a health condition such as asthma, diabetes or epilepsy?

CYP Health Tech would like your input from young people aged 11-18 who have a health condition, and their parents or carers, in a project looking at how best to develop young people's health technology.

The first meeting will be online in November 2021

Email Jackie to find out more:

Jackie.martin-herry@york.ac.uk

To learn more about the project, click HERE

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Ends: January 15, 2022

Sign - Up For "Ask the Experts" with Special Guest Lisa Koppelman

Calling All iCAN Youth Members -

Join Dr. Anthony Chang for an exciting session of Ask the Experts on COVID-19 and "Where Are We Now" with Special Guest Lisa Koppelman.

 

Bring a friend, tune in and share your ideas about what you want to do in research, science, innovation and technology.  

Each month, iCAN and Dr. Chang will highlight a new topic for kids around the world to discuss and participate in fun sessions.  

Be sure to register for all sessions to make sure you are on the list!  

Click here to register!

Any questions?  email info@icanresearch.org

RareVoice Awards 2021

December 15th at 7pm ET

Join the 10th Annual RareVoice Awards

Join the EveryLife Foundation in congratulating the RareVoice finalists who are amazing advocates that give rare disease patients a voice on Capitol Hill and in state government.

iCAN is proud to share that KIDS Michigan youth member Olivia Ohmer is a finalist in the Artist-to-Advocate category of the RareVoice Awards.

To learn more about the RareVoice Awards and register, click HERE

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Ends: November 18th, 2021

International Opportunity for iCAN

iCAN is seeking ONE YOUTH MEMBER FROM THE US for a session during the  1st International Conference on Rare Diseases and Paediatric Research that will be held online. More information about the meeting and the program is available at this link: 

https://www.pedrare2021.eu/

 

Within the program, on November 18, we will organise a Roundtable with Kids #KidsinResearch, that should be organised as a roundtable with representatives from several YPAGs on the topics of patients involvement and empowerment.

Our idea is to pre-record the session not later than November 12, in order that the young people cannot have any conflicts with school times and feel more comfortable.

 

We need one youth member from the United States to attend the session.  No medical condition is required.  

 

The session would last 25 minutes. Please find below a proposal of questions and KIDS involvement that we can use for organising the Roundtable.

I would make one question for the group and then a short discussion on some questions.

 

Questions

  • What do you mean with children's participation in health decision making ? Is it a right? (KIDS France)

  • Can you provide an example of children's participation in decision making in which you or your group have been involved? (KIDS from UK)

  • Which are the benefits of involving children and young people in research? (KIDS from ICAN)

  • Which are the challenges and the difficulties in involving children and young people in research? (KIDS Barcellona)

  • Can you provide one example of involvement of young people in paediatric research? (KIDS Albania member can describe the activity done in the EPTRI surveys, while KIDS Bari member can present the serious game)

  • Questions to be answered by all or some of them: How much do you think it is important the training in order to be correctly involved in research?

  • Have you ever been involved in clinical trials? In which  activities have you been involved in?

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Ends: October 20th, 2021 4pm EST

On Wednesday, October 20th, the EveryLife Foundation will convene its 13th Annual Rare Disease Scientific Workshop to explore the “Current and Future Barriers to the Utilization of Accelerated Approval Pathway for Novel Rare Disease Therapies.” Through expert panels and real-world case study presentations, partners representing patient advocates, government agencies, pharmaceutical companies and researchers will identify the research, regulatory, and access policy barriers to increasing the utilization of the Accelerated Approval pathway for rare disease therapeutic development.

Watch the event livestream, HERE, on October 20th, and join the conversation on social media using #ScientificWorkshop2021

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Ends: September 21st, 2021

Join Georgia Tech students for fun STEM activities

The KIDS Georgia Chapter invites all iCAN Chapters to attend a fun online event using zoom with Georgia Tech’s HealthReach class at 5:30-6:15pm EST, on Tuesday, September 21st, 2021.  The Georgia Tech Students in this course will be leading iCAN through STEM related education activities and gathering feedback from youth members! See https://bmehealthreach.gatech.edu if you would like to learn more about what they do. 

 

Chapter Leader Cydney Opolka is inviting you to a scheduled Zoom meeting.

 

Topic: HealthReach and KIDs GA

Time: Sep 21, 2021 05:30 PM Eastern Time (US and Canada)

 

To RSVP - send an email to Amy Ohmer at 

Amyohmer@icanresearch.org with your name and chapter.  Amy will send back an email with the zoom log-in information so that you may enter the meeting.  

 

If you have any questions about the event or trouble logging in, please reach out to Cydney at cydneyao@gmail.com

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Ends: September 1st, 2021

Be A Panel Speaker for PEDS2040  

Calling All iCAN Youth Members and Parents -

iCAN is seeking youth members to share their expert voices (along with some parents!) to talk about ideas in pediatric innovation at the upcoming iSPI PEDS2040 Virtual Conference.  

iCAN will select up to four youth members to participate - and parents are encouraged to join. 

To sign up to participate, please send us an email at info@icanresearch.org by September 1st, 2021

 

To learn more about the event, visit: https://www.ispi4kids.org/peds2040/

Hurry, this closes by September 1st, 2021. 

Cute Girl

Ends: July 19th, 2021

Kids - What's on Your Wish List?

Calling All iCAN Youth Members -

The AAP (American Academy of Pediatrics) wants to know what is on your medical wish list!

Please click below to fill out the survey before the AAP's session at Jumo Health Presents the 2021 iCAN Virtual Summit on Tuesday July 13th!

To learn more about the summit, head to our 2021 Summit page!

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Ends: June 21st, 2021

Celebrate International Yoga Day with a Virtual Yoga Class!

Join Remember The Girls & Move2Advocate for fun and relaxing Virtual Yoga Class!

The class will be led by Elisabeth Parker from Move2Advocate.

The Virtual Yoga Class will be available on Remember The Girls Facebook page live on Monday June 21st at 4PM Pacific Time/7PM Eastern Time!

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Due: February 25th, 2021

Telemedicine Event

Interested in speaking about your wearable and/or COVID19?

Then you just might be the perfect fit for a Telemedicine Webinar on March 25!

The webinar will have clinicians and researchers, including our very own President Leanne West, who are interested in how telemedicine will look in the future with wearables, as well as how covid has changed the timeline for telemedicine and what we’ve learned!

If interested, contact us at:

info@icanresearch.org

Science Class

Ends: March 17, 2021

Share your Clinical Research Expertise with iCAN

iCAN is working on a very important project in which we are capturing youth expertise and experiences on clinical research through recorded videos. 

 

The goal of this project is to provide a curriculum for other kids (and adults) that want to better understand clinical research and what that means to kids.  

The questions will be made into mini videos to help other kids understand "what is clinical research" or "what is an assent", etc..  You can answer the questions, which are linked below, in your own words using your own experiences.

 

The answer to each individual question can be very short - may 20 or 30 seconds max.  When you record, we can take the list and edit ourselves, so feel free to make one continuous recording. 

Clinical Research Questions

Any questions?Email

clairedestrampe@icanresearch.org

Track and Field Runner

Due: March 31st, 2021

Take our survey from EPTRI

New EPTRI survey that has been reviewed by KIDS Italy, KIDS Albania, and KIDS Barcelona to create language that is comprehensible and child-friendly.

 

The survey is aimed at collecting data on preference of dosage forms for guiding the development of age-appropriate medicines. It was reviewed and translated by the YPAGs of Albania, Barcelona and Bari and is addressed to boys and girls up to 18 years of age. 

 

The survey is still open and available in 9 languages:

Girls Studying

Due:  January 31st, 2021

Hey Kids - Check out this Assent Survey!

Hello members, get ready for a new survey!

This questionnaire will be used by iCAN to better understand kid thoughts on the following Assent Templates.

 

The goal for gathering this information is to ensure that all kids in the age ranges are able to understand the Assent Templates!

Check the links below to access your corresponding Assent Survey!

Ages 3-6: Click here

Ages 7-12: Click here

Ages 13-18: Click here

Studying on a Computer

Due:  August 30th, 2020

iCAN Youth Council Wants to Know... take a survey!

iCAN's youth council is conducting a study on how the COVID-19 pandemic has affected aspects of your life. Whether remote learning hampered your learning experience or quarantine reduced your ability to receive necessary medication, we want to hear from YOU. It will take less than 2 minutes of your time but your feedback will be invaluable in helping policy makers. 

 

If you have any questions please feel free to contact Ananya Ganesh at agan1213@gmail.com. Thank you!

Survey in link below:

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Due:  August 21st, 2020

Take the Survey to Tell Us What You Want for the Next Event

Dr. Anthony Chang from iSPI and AIMed would like to create a series of talks designed for kids to share their voices.  

To help us better design these sessions, we need iCAN Youth Member Feedback.  

Take the survey below by Friday, August 21, 2020 to help us create the best event!  

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Due:  June 30th, 2020

Share Your Story 

Eli Lilly and Company (Lilly) is partnering with iCAN to feature art created by iCAN members under the age of 18.  Every submission that meets the criteria below will appear on the newly created website for pediatric research on Lilly TrialGuide.  The iCAN leadership team will also include the images on the iCAN website.

We would like you to submit an image that reflects your experience with healthcare, whether a photo, drawing, sketch, poem, etc.  Please check out the attached flyer.  The key is to be creative and tell your story.

Here are the criteria for submission:

Holding Tablet Computer

Due:  July 22nd, 2020

Kids - Take the OHANA Study Survey

Your voice matters!  We have many ideas for sharing information about a pediatric clinical research study and need your help to better understand what children around the world need.  To take this brief study, visit SURVEY IS CLOSED 6/22/20 or click on the link below.  Hurry, this survey is closing soon!

Science Courses

Due:  June 12th, 2020

Young Authors Wanted

Calling all young authors for a chance to win a trip to Philadelphia to visit The College of Physicians of Philadelphia, CHOP Research Institute and $1,0000 cash prize.  To enter, learn about Dr. Hilleman, and write a 500-600 word essay that answers the question, “How was Dr. Hilleman’s integrity important to his success, and how is integrity important to you?” Essay should be written in English using complete sentences and appropriate grammar. One entry per person.  Application through the link below.  Good luck!  

Live Show Recording

Due: April 30th, 2020

Adult and Youth living with Rare Disease to Participate in Virtual Global Conference 

iCAN has partnered to share one youth voice and one adult voice during from 11:00 am - 12:00 noon, eastern time, on May 20th, 2020 during a virtual event dedicated to Rare Disease.  If you are diagnosed with a Rare Condition and would like to take part in this virtual experience through sharing your personal journey, participation in clinical research and iCAN, we would love to hear from you.  Contact us today to learn more.   

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Due: April 30th, 2020

CANCELLED Due to FREE Virtual Summit - iCAN Summit Scholarship

iCAN Youth Members may be eligible to earn one of two scholarship(s) in memory of two special iCAN Youth Members; Kate and Felix.  The scholarships are created to support attendance at the 2020 iCAN Research Summit in Lyon, France from July 14th to July 18th, 2020.  Click on the link to see the rules and how to apply.  We can't wait to see what you do!  Good luck! 

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Due: EXTENDED March 30th, 2020

Join iCAN Youth Council

Calling all iCAN youth!!  Are you interested in joining a fun group  of collaborative innovators interested in learning more about pediatric medicine and advocacy in healthcare?  Then, join us at iCAN Youth Council.  If you are interested, please send a message to the 2020 iCAN Youth Council Leader, Ananya Ganesh at agan1213@gmail.com  - We hope to hear your voice. 

Playing Videogames

Due: Until Full

Be a Beta Tester

Our partner, Thrust, is looking for iCAN Youth Members to help with beta testing. 

 

In game development, before releasing the game officially, it is often first released in two stages called the alpha and beta phases. In the beta phase, the game is likely to contain a number of issues and bugs and we need your help to make sure we find them all! We’ll also value any and all input you have to make our game as fun as possible! 

Ray of Light

Due: October 21st, 2019

Two Parent Advisors Needed

In partnership with the Pediatric Trials Network (PTN), we are seeking two parents of young children that have experienced acute pain. The two selected parents will be asked to join the external advisory board for the Clinical Outcome Assessments for Acute Pain Therapeutics in Infants and young Children (COA-APTIC), aimed at developing a core set of clinical outcomes assessments for infants and young children (0 – 2 years of age) undergoing treatment for acute pain.  To participate, please send an email using the link below.