Most of our youth members range in age from 8-18, with some chapters having members a little younger or a little older. Many of our youth are medically complex or live with chronic or rare disease, though some do not have any diagnosed medical condition. All are interested in having their voices heard by individuals, industry, and government agencies who can make a difference in pediatric healthcare.
The Experts of
Meet Meghan, an iCAN Youth Member from KIDS Texas that is taking the world by storm through sharing her story of living with Spina Bifida Myelomeningocele and Hydrocephalus. At 10 years old, advancing within 8th grade curriculum, Meghan is already thinking ahead to becoming a woman of science and showing that there are no boundaries to the possibilities that life offers! We are so excited to share her journey and to spotlight Meghan!
Telling Their Stories
Sophia Klaudt, active youth member of KIDS Kansas City, and Reece Ohmer, from KIDS Michigan, present their stories at the 2019 Pediatric Academic Society Conference in Baltimore MD, in partnership with the Pediatric Trials Network, to help impact the way that physicians, nurses, researchers, scientists, innovators, and medical professionals engage youth through clinical research.
As Sophia shared her voice, it became clear that iCAN is changing the way our world views pediatric expertise... as much of the great learning can come right from the kids, themselves.
Have you felt the impact of taking a negative and turning it into a positive? For Reece Ohmer, the answer is clear... if you help a child diagnosed with a medical condition, through supporting clinical research, you have already created a positive change that will impact the lives of kids around the world.
KIDS Florida members attended the 2018 American Academy of Pediatrics (AAP) conference, where they ran the iCAN booth, collected data for their own research, presented research in the poster session, and shared their voices with an AAP committee on active shooter training.
Present Original Research
iCAN Youth Council Representatives at the 2019 Southeastern Pediatric Research Conference (L-R) Hampton Woods, Ananya Ganesh, and Jake Haygood presenting original iCAN Scientific Poster on "Facilitators and Barriers to the Training and Maintenance of Young Person's Advisory Groups (YPAGS). The research led by KIDSCAN and iCAN Youth Council Leader, Vivian Tsang (Not Pictured) helps to share the necessity of including the young person's perspective within all pediatric research.
Help the Next Kid
Kalee, age 14 from KIDS Georgia has a great perspective on helping kids and explains what it means to be a part of the International Children's Advisory Network and how it has helped her, and her family, to inspire others along the way.
Cooper, age 15 from KIDS Georgia works with researchers at Georgia Tech to test a protocol for a robotic exoskeleton that might one day help kids with cerebral palsy. (Pictured left)
iCAN members participating in a focus group with industry (Pictured Right)
Our iCAN youth members are experts in their own care, and as such, this expertise drives their desire to create innovative, savvy, and useful technology that supports the needs for children, teens, and young adults to live full, limitless lives.
"It's annoying to get lots of text messages from your mom about diabetes stuff when you are a teenager with type 1 diabetes," said KIDS Michigan members, Reece and Olivia Ohmer. Their Solution? Make communication easier between parent and child through the use of diabetes emoticons.
Created by KIDS Georgia members Jake Haygood and Hampton Woods, the Medic Alert Bracelet lets first responders see your pertinent health record with the swipe of an RFID reader.
Meet Scott Koh, a youth member from KIDS Houston.
iCAN at Scott's house is shared with his entire family as his sister, and both parents are part of the iCAN family. It was no surprise, that after taking a class at school, Scott wanted to share his learnings of iCAN with his classmates.
Go on to
Meet Vivian Tsang, a founding member of iCAN from KIDSCAN Vancouver, Canada. As Vivian shares, one of her favorite iCAN moments included playing a key role in creating the global chapter network from the very beginning in 2014. As Vivian reflects upon her foundation, she shares her passion for empowering young people by providing opportunities within research and advocacy. Vivian further shares her pathway to success on the iCAN journey by explaining her personal story and the challenges she had to overcome, but drawing upon her inner strength, which has helped her lead others into the future. To read more about her personal story , what she's doing now, and where she hopes to be in the future, click on the link below.
Meet Nick Frederico, a member of KIDS CT and a former iCAN Coordinator, who has shared his passion of learning throughout the organization, and now, with the greater medical community as he completes his final year of medical school.
In Loving Memory
Kate and Felix were two members who forever made an impact on iCAN through their work in pediatric research and advocacy. They are missed dearly, and we work hard to celebrate their hard work and passion each and every day.
Please click the link below to learn more about Kate and Felix, and how you can help honor their memory.