iCAN Member and Community Research
Posters & Papers

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2021 Authors Include: Jennifer Degl, Ronald Ariagno, Judy Aschner, Sandra Beauman, Wakako Eklund, Elissa Faro, Hiroko Iwami, Yamile Jackson, Carole Kenner, Ivone Kim, Agnes Klein, Mary Short, Keira Sorrells, Mark A. Turner, Robert Ward, Scott Winiecki, Christina Bucci-Rechtweg, International Neonatal Consortium

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2022 Authors Include: J. Preston, B. Nafria, A. Ohmer, S. Gaillard, P. Dicks,

L. West, M.A. Turner

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Talking to Teens About Clinical Research:  The Development of Educational Brochures By and For Youth

2022 Elisa Koppelman, MSW, MPH, Walker Morrell,  MBE, Ava Glazier, Amanda Shih, Barbara E. Bierer, MD. on behalf of the MRCT Center Pediatrics Project Working Group.  

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Engaging Youth Throughout Product Development:  Why, When, Who, and How

2022 Elisa Koppelman, MSW, MPH, Barbara E. Bierer, MD. on behalf of the MRCT Center Pediatrics Project Working Group. 

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Understanding the complexities of the U.S. healthcare system: Systematic social barriers that are preventing people with invisible illnesses from receiving the healthcare they need

2021 Author: Ohmer, Reece

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Transition from Pediatric to Adult Care for Youth with Chronic Diseases: Youth, Caregiver, and Provider Perceptions

2021 Authors include, Tsang, Vivian W. L. MD, MGC*; Fletcher, Sarah*; Jassemi, Sara MD, FRCPC†; Smith, Sharon MD, FAAP

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Video Abstract: Transition from Pediatric to Adult Care for Youth with Chronic Diseases: Youth, Caregiver, and Provider Perceptions

2021 Authors include, Tsang, Vivian W. L. MD, MGC*; Fletcher, Sarah*; Jassemi, Sara MD, FRCPC†; Smith, Sharon MD, FAAP

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Facilitators and Barriers to the Training and Maintenance of Young Person's Advisory Groups (YPAGs)

2019 iCAN Authors include, Tsang, Vivian W.L., Chew, Siaw Yee, Koh, Sara, Fletcher, Sarah, Goddard, Grant, ElSayegh, Lydia, Stones, Simon, Ainsworth, Sophie, Ohmer, Reece, Woods, Hampton, Haygood, Jake, Ohmer, Olivia, Junker, Anne K., Faculty of Medicine, University of British Columbia, Vancouver, BC Canada British Columbia Children’s Hospital, Vancouver, BC Canada

3International Children’s Advisory Network (iCAN)

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Role of the Patients and Parents in Pediatric Drug Development

2019 iCAN Authors Vivian L.S. Tang, Leanne West, MS, Christine Woods, BS, Chester J Koh, MD, Susan McCune, MD, Theresa Mullin, PhD, Sharon R. Smith, MD, Segolene Gaillard, MS, Joana Claverol, MS, Begonya Nafria, MS, Jennifer Preston, PhD, Pamela Dicks, PhD, Charles Thompson, MD, FCAP share insight to the Role of Patients and Parents in Pediatric Drug Development.  

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International Children’s Advisory Network: A Multifaceted Approach to Patient Engagement in Pediatric Clinical Research

Authors Meghan Gwara, BS, Sharon Smith, MD, Christine Woods, BS, Elizabeth Sheeren and Hampton Woods share how iCAN Research is formed as a pediatric collaborative for support within pediatric clinical trials, patient advocacy, innovation, research, science and support within the global pediatric healthcare community.  

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Supporting children and young people when making decisions about joining clinical trials: qualitative study to inform multimedia website development

Jenny Preston, GEN R, and expert team, release exciting and informative research paper.

Overview:  To understand stakeholder's views regarding the content and design of pediatric clinical trial multimedia websites.

Setting:  One UK Children's Hospital and One Young Persons' Advisory Group (YPAG).

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Perceptions of Transition from Pediatric to Adult Care for Youth with Chronic and Rare Diseases

Presented at the Southeastern Pediatric Research Conference, 2018

and

the American Academy of Pediatrics Section on Advances in Therapeutics and Technology (SOATT), 2018

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iCAN, FCAAP, and Florida Residency Programs Join Forces to Advocate for Kids

Presented at the American Academy of Pediatrics Family Partnership Network Meeting, 2018

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Assessment of a shortened informed consent form for pediatric research: a pilot study

41 iCAN Youth Members contributed to the project during the 2017 iCAN Summit

Authors: Peter D. Murray, Barbara E. Bierer, Steven Hirschfeld, Andreas K. Klein and Jonathan M. Davis

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HannahBatchelor.com, 

Making medicines child sized

Author: Professor Hannah Batchelor

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iCAN: Providing a Voice for Children and Families in Pediatric Research

Presented at the DIA, 2015

Authors: Hadleigh Thompson1, Nicholas Frederico, BS1, Sharon R. Smith, MD2, Manil Chowdhury, BA3, Pamela Dicks, PhD4, Jennifer Preston, PhD5, and Charles Thompson, MD6