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Meet our iCAN Parent Council

  • Parents and Guardians of any child of all ages that want to support the youth voice.

  • Families (siblings, cousins, aunts, uncles, and grandparents) of any child of all ages that want to support the youth voice.

  • Committed to the iCAN Mission.  

  • Creating and participating in opportunities to support pediatric healthcare excellence.

  • Engaged throughout their local community, nationally, and globally.

  • Seeking support through project participation, speaking experience, networking, and educational opportunities. 

Tips for Keeping Kids Safe both Online and Off

To see all articles at the American Academy of Pediatrics Healthy Children click below!

Join the iCAN Parent Council

The iCAN Parent Council is an engaged group of parents and caregivers whom are dedicated by supporting youth initiatives throughout iCAN.

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Projects, Opportunities, Resources
For Parents & Families

Have a project, opportunity, or resource you would like to share? Email us at


Parent Survey on Pediatric Clinical Trials

Open Now!

This survey is a great opportunity to help further families understanding of clinical trials and the process of partaking in one.


Presented by iCAN's Parent Council, this is an initiative by parents for parents.

Medical Team

What Parents Should Consider When Enrolling Children in Research

JAMA Pediatrics

Are you interested in enrolling your child in a research study?

Click below to learn about the different requirements for research studies, how to find a study, and more.

Provided by JAMA Pediatrics.

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RACE for Children Act

From Labcorp Drug Development Inc.

Learn How the RACE for Children Act Impacts Pediatric Oncology Drug Development

Click below to learn more.


Making Informed and Shared Decisions About Genetic Testing and Clinical Trial Participation

Global Genes 

"In this toolkit, you’ll learn how to consider what’s right for you—and how to apply shared decision-making skills to the choices you make related to genetic testing and gene therapy clinical trials."

Provided by Global Genes.


Parents & Families: Ways to get involved

iCAN Resource

Are you looking for different ways to get involved with iCAN?

Check our "For Kids" page to find activities for the entire family.

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The Road Map Project

American Board of Pediatrics (ABP)

The American Board of Pediatrics (ABP) is working with patients, parents, and the Learning Networks Program of the Anderson Center for Health Systems Excellence to increase awareness for patients, families, clinicians, and provide ways to help.


The Roadmap Project is a national effort that aims to support the resilience, emotional, and mental health of pediatric patients with chronic conditions and their families.

Click below to learn more about the Road Map Project featuring iCAN's Director, Amy Ohmer.


Financial Advocacy in Rare Diseases: Landscape Assessment

Global Genes 

"The purpose of this landscape assessment is to support the development and maintenance of a sustainable, grassroots initiative focused on addressing financial advocacy and the impact on psychosocial well-being and quality of life for patients with rare diseases."

Provided by Global Genes.

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Parents' Perspective: The Need for Emotional Support

Children's Hospital Association

Emotional health is an essential component of child health, especially for families of pediatric patients with chronic conditions. 

Click below to read more.

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Is My Doctor Board Certified?

American Board of Medical Specialities (ABMS)

The American Board of Medical Specialties (ABMS) is the recognized leader in developing and setting the gold standard for physician specialty certification in the U.S. The 24 ABMS Member Boards that offer board certification in 40 specialties and 88 subspecialties adhere to rigorous training and assessment standards.

Board certification is a significant achievement that not all doctors attain. Board certified doctors:

  • Skilled and knowledgeable

  • Experts in their specialty

  • Meeting a higher standard

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