Why Partner with Us? Here's What Our Partners Have to Say.

Phyllis Kennel, MS RD LDN, PMP, Assistant Director, Clinical Operations at Duke Clinical Research Institute, and Pediatric Trials Network

"Having the opportunity to watch youth and their parents, learn and grow in their knowledge of clinical research and how they can impact outcomes was an amazing experience.  The passion that they have to improve clinical care for children is inspiring and I believe our future is in great hands.”

Dr Martine Dehlinger-Kremer, Vice President Pediatric Development, Synteract

"Giving children and child advocacy groups a voice in pediatric drug development leads to better pediatric clinical trials, with enhanced recruitment and retention.  Lessons I’ve learned and shared from iCAN have led Synteract to bring improved pediatric clinical trials to life. Thank you iCAN!"

Laura Deason,  Feasibility Manager & Patient Advocate, Synteract 

"As a site and patient advocacy professional, participating in the 2019 iCAN Summit was a highlight of my year. I was moved by the thoughtful responses and brilliant insight the children shared in order to improve the future outlook for them and other kids in need.  That is commitment! I am honored to support iCAN."


Melissa P. Keeney
Consultant-Design Team, Small Molecule Design and Development
Eli Lilly and Company

"As a pharmaceutical product designer, I need to truly understand our patients’ experiences and needs.  The iCAN summit provides a rare and unique opportunity to connect with well-informed, thoughtful youth and parents and hear their personal stories firsthand.  The feedback we received on the pill swallowing training has already been used to further development of the brochure and toolkit concept.  We hope to offer these training materials in upcoming pediatric clinical trials.  The information on the age that individuals learned to swallow pills helps to guide our thinking on age appropriate dosage forms.  Thank you very much to the iCAN participants for sharing their perspectives and helping us deliver meaningful solutions."

Antoniou Fantana

Advisor-GPS Analytics


Eli Lilly and Company

"To me, iCAN has been incredibly powerful, inspiring, and humbling. It gave me the ability to speak to the smart, engaged kids who are battling various illnesses. I can think of no better way to truly be patient centric and centered."

Courtney Tate

Sr Research Scientist

Pediatric Capabilities

Eli Lilly and Company

"The input received and interaction with the youth and parents was invaluable to our projects.  It is very motivating to see a group of youth so dedicated and involved in pediatric research!   We truly appreciate your insight and creative thinking, and we look forward to your input on additional projects!" 

Jessica Kofi & Nicole Goedhart
Faculty of Science, Athena Institute, VU University Amsterdam
PARADIGM International Liaison Group

We obtained such rich and valuable input from all interview participants! We cannot thank you enough! It has been an absolute fruitful collaboration.

Leigh Anne Naas Community Manager, Patient Experience & Design Innovation
Eli Lilly and Company

First off, I’d like to convey my gratitude to iCAN and Live Like Bella for your enthusiastic support of this social media conversation. Our @LillyTrials, thanks you for identifying a young adult survivor of pediatric cancer, she was a wonderful partner! Her responses were poised and informative, and we love how she brought her mother into the conversation. I can easily see why you recommended her for this opportunity.

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Email: info@icanresearch.org


iCAN has operated under the Foundation for Children, Inc, a registered 501(c)3 since 2015 and has filed for its own 501(c)3 status, which is currently pending.


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