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Youth Thoughts & Opinions

iCAN's Youth take on Eli Lilly's Elixir Factor Podcast

Hear from our youth. 



Hear from our youth. 

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Why is iCAN

Hear from our youth. 


What's it like to be a sick kid?

Hear from our youth. 


The Invisible Condition

A documentary on changing the perception of chronic pain 

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DigiKnowIt brings you:
Why do kids participate in clinical research?

Hear from kids on DigiKnowIt's website, linked below!


How does iCAN

inspire me?

2019 Summit Award Winner

Hear from Kaylee 


Providers should speak directly to me and not my parent. I’ve had to wave my arms and say “I’m right here!”

One time a nurse came in on his day off just to play Wii with me.

I vouched for my mom when the doctors didn’t listen to her. She’s with me every day, all day long.

My nurse practitioner talks about stuff way beyond my diagnosis – it borders on gossip! What’s happening at school, friends, etc… it makes me want to go to clinic.

I like it when my physician introduces himself and says “Call me John”.

It’s always kind of funny when the nurse says “I hope I never see you again.”

I don’t like it when the doctors talk over me. You have to learn to advocate for yourself.

Don’t make up an answer. I’d rather you say you don’t know. I can tell if you are holding back an answer. I don’t want pity.

My doctor retired; I still text him when I get good test results and he texts me back “good job!”

We went to my NP’s retirement party; she was pretty young when I started seeing her – she’d been with me throughout most of my life.

I asked “am I going to die?” and my nurse said “yes.” – I started crying.

They restricted my visitors because I needed rest. (The rest of the group moaned loudly and all said “I hate it when they do that!”)

Nurses are the unsung heroes.

My nurse wasn’t a sugar-coater. I had three shunt revisions in a month and said “I’m probably going to be back here in a month” and she said “you probably are.”

I am a part of the future who wants to make a difference.

I love working with Residents. When they admit what they’re scared of – that was really eye-opening for me.

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