Youth Thoughts & Opinions
Providers should speak directly to me and not my parent. I’ve had to wave my arms and say “I’m right here!”
One time a nurse came in on his day off just to play Wii with me.
I vouched for my mom when the doctors didn’t listen to her. She’s with me every day, all day long.
My nurse practitioner talks about stuff way beyond my diagnosis – it borders on gossip! What’s happening at school, friends, etc… it makes me want to go to clinic.
Nurses are the unsung heroes.
I like it when my physician introduces himself and says “Call me John”.
It’s always kind of funny when the nurse says “I hope I never see you again.”
Don’t make up an answer. I’d rather you say you don’t know. I can tell if you are holding back an answer. I don’t want pity.
I don’t like it when the doctors talk over me. You have to learn to advocate for yourself.
My doctor retired; I still text him when I get good test results and he texts me back “good job!”
I asked “am I going to die?” and my nurse said “yes.” – I started crying.
We went to my NP’s retirement party; she was pretty young when I started seeing her – she’d been with me throughout most of my life.
My nurse wasn’t a sugar-coater. I had three shunt revisions in a month and said “I’m probably going to be back here in a month” and she said “you probably are.”
I love working with Residents. When they admit what they’re scared of – that was really eye-opening for me.
They restricted my visitors because I needed rest. (The rest of the group moaned loudly and all said “I hate it when they do that!”)
I am a part of the future who wants to make a difference.